Browsing by Author "Giese-Davis, Janine"

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    Documenting patients’ and providers’ preferences when proposing a randomized controlled trial: a qualitative exploration
    (2022-03-06) Oberoi, Devesh; Kwok, Cynthia; Li, Yong; Railton, Cindy; Horsman, Susan; Reynolds, Kathleen; Joy, Anil A.; King, Karen M.; Lupichuk, Sasha M.; Speca, Michael; Culos-Reed, Nicole; Carlson, Linda E.; Giese-Davis, Janine
    Abstract Background With advances in cancer diagnosis and treatment, women with early-stage breast cancer (ESBC) are living longer, increasing the number of patients receiving post-treatment follow-up care. Best-practice survivorship models recommend transitioning ESBC patients from oncology-provider (OP) care to community-based care. While developing materials for a future randomized controlled trial (RCT) to test the feasibility of a nurse-led Telephone Survivorship Clinic (TSC) for a smooth transition of ESBC survivors to follow-up care, we explored patients’ and OPs’ reactions to several of our proposed methods. Methods We used a qualitative study design with thematic analysis and a two-pronged approach. We interviewed OPs, seeking feedback on ways to recruit their ESBC patients for the trial, and ESBC patients, seeking input on a questionnaire package assessing outcomes and processes in the trial. Results OPs identified facilitators and barriers and offered suggestions for study design and recruitment process improvement. Facilitators included the novelty and utility of the study and simplicity of methods; barriers included lack of coordination between treating and discharging clinicians, time constraints, language barriers, motivation, and using a paper-based referral letter. OPs suggested using a combination of electronic and paper referral letters and supporting clinicians to help with recruitment. Patient advisors reported satisfaction with the content and length of the assessment package. However, they questioned the relevance of some questions (childhood trauma) while adding questions about trust in physicians and proximity to primary-care providers. Conclusions OPs and patient advisors rated our methods for the proposed trial highly for their simplicity and relevance then suggested changes. These findings document processes that could be effective for cancer-patient recruitment in survivorship clinical trials.
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    Exercise and nutrition for head and neck cancer patients: a patient oriented, clinic-supported randomized controlled trial
    (BioMed Central, 2012-10-02) Capozzi, Lauren C; Lau, Harold; Reimer, Raylene A; McNeely, Margaret; Giese-Davis, Janine; Culos-Reed, S Nicole
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    Mindfulness-based cancer recovery and supportive-expressive therapy maintain telomere length relative to controls in distressed breast cancer survivors
    (Wiley, 2014-11-03) Beattie, Tara L.; Speca, Michael; Degelman, Erin S.; Fick, Laura J.; Tamagawa, Rie; Faris, Peter; Giese-Davis, Janine; Carlson, Linda E.
    Group psychosocial interventions including mindfulness-based cancer recovery (MBCR) and supportive-expressive group therapy (SET) can help breast cancer survivors decrease distress and influence cortisol levels. Although telomere length (TL) has been associated with breast cancer prognosis, the impact of these two interventions on TL has not been studied to date.
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    Screening for distress, the 6th vital sign: common problems in cancer outpatients over one year in usual care: associations with marital status, sex, and age
    (Springer Nature, 2012-10-2) Neri, Eric; Bultz, Barry D.; Dunlop, Bernie; Rancourt, Kate M.S.; Adamyk-Simpson, Jassandre; Giese-Davis, Janine; Waller, Amy; Carlson, Linda E.; Groff, Shannon; Zhong, Lihong; Bachor, Sacha M.
    Very few studies examine the longitudinal prevalence of problems and the awareness or use of clinical programs by patients who report these problems. Of the studies that examine age, gender and marital status as predictors of a range of patient outcomes, none examines the interactions between these demographic variables. This study examined the typical trajectory of common practical and psychosocial problems endorsed over 12 months in a usual-care sample of cancer outpatients. Specifically, we examined whether marital status, sex, age, and their interactions predicted these trajectories. We did not actively triage or refer patients in this study in order to examine the natural course of problem reports.
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    Screening for distress, the 6th vital sign: common problems in cancer outpatients over one year in usual care: associations with marital status, sex, and age
    (BioMed Central, 2012-10-02) Giese-Davis, Janine; Waller, Amy; Carlson, Linda E; Groff, Shannon; Zhong, Lihong; Neri, Eric; Bachor, Sacha M; Adamyk-Simpson, Jassandre; Rancourt, Kate MS; Dunlop, Bernie; Bultz, Barry D
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    Speaking Thier Language: A Randomized Pilot Study of Synchronous Online Chat Groups for Young Adults with Cancer
    (2015-08-05) Lang, Michael; Giese-Davis, Janine; Dort, Joseph
    Background: In Canada, over 7,000 adolescents and young adults or “AYA” (ages 18 to 39 years) are diagnosed with cancer annually. Few evidence-based psychosocial interventions exist for this population. Methods: We conducted a randomized pilot study to compare a new AYA-specific psychotherapy model to a standard psycho-educational model, using CancerChatCanada (CCC) synchronous online chat groups. Results: 34 AYAs in Alberta participated in the study and all feasibility targets were met. Participants rated the new AYA model more suitable and it appeared to improve important group processes and psychosocial outcomes. A power calculation providing sample size estimation for an RCT indicated that more than 90 participants would be needed to demonstrate differential efficacy between groups. Discussion: This randomized study design is feasible with some important modifications. Conclusion: Online synchronous chat groups can be used to provide psychosocial care for AYAs. Future RCTs could provide evidence of efficacy for age-specific psychotherapy models.