Browsing by Author "Hebert, Marilynne"

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    Advanced Cancer Patients' Perspectives on a Video Decision Support Aid used to Enhance Goals of Care Discussions
    (2016) Grendarova, Petra; Hebert, Marilynne; Carr, Eloise; Trotter, Theresa; Kerba, Marc
    The purpose of this study was to explore perspectives of advanced cancer patients on the use of a video decision support aid developed to enhance Goals of Care (GOC) discussions and to examine how the video influenced participants' perceptions and knowledge about GOC. A qualitative approach was applied to collect data from participants before and after watching the video. Semi-structured interviews were conducted with 14 participants from an Outpatient Radiation Oncology Bone Metastases Clinic. Extended Elaboration Likelihood Model was the conceptual framework used to guide data analyses. Participants found the video scenarios made the GOC framework more personally relevant. They were able to relate their experiences to the video. Participants found the timing and professional clinic environment appropriate for watching the video. Several participants expressed their intention to initiate discussions with their health care providers and to formalize their GOC plans.
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    Evaluation of a Targeted Video for Transition from Pediatric To Adult Care For Patients with Type 1 Diabetes Mellitus
    (2016) Winston, Karin; Dewey, Deborah; Pacaud, Danièle; Rabi, Doreen; Hebert, Marilynne; Ho, Josephine
    Transition from pediatric to adult care is challenging for patients with complex, chronic illnesses such as type 1 diabetes mellitus. To optimize successful transition of care, providers put great efforts into preparing patients for the change. This thesis evaluated the use of videos for patient decision-making in general and one video in particular that was designed to facilitate transition of care. The scoping review demonstrated that there is a vast amount of published data, which show that videos are effective in helping patients make decisions. The focus group study affirmed that patients appreciate the incorporation of a video in their transition preparation. These participants also noted that the process of transition required then to deal with complex emotional ambiguity as well as navigate logistic challenges. Video resources, which may be particularly useful to prepare in youth and young adults for important junctions in care, are valuable tools that should continue to be developed and refined.