Browsing by Author "Manalili, Kimberly"
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Item Open Access Co-designing person-centred quality indicator implementation for primary care in Alberta: a consensus study(2022-11-08) Manalili, Kimberly; Scott, Catherine M.; Hemmelgarn, Brenda; O’Beirne, Maeve; Bailey, Allan L.; Haener, Michel K.; Banerjee, Cyrene; Peters, Sue P.; Chiodo, Mirella; Aghajafari, Fariba; Santana, Maria J.Abstract Background We aimed to contribute to developing practical guidance for implementing person-centred quality indicators (PC-QIs) for primary care in Alberta, Canada. As a first step in this process, we conducted stakeholder-guided prioritization of PC-QIs and implementation strategies. Stakeholder engagement is necessary to ensure PC-QI implementation is adapted to the context and local needs. Methods We used an adapted nominal group technique (NGT) consensus process. Panelists were presented with 26 PC-QIs, and implementation strategies. Both PC-QIs and strategies were identified from our extensive previous engagement of patients, caregivers, healthcare providers, and quality improvement leaders. The NGT objectives were to: 1. Prioritize PC-QIs and implementation strategies; and 2. Facilitate the participation of diverse primary care stakeholders in Alberta, including patients, healthcare providers, and quality improvement staff. Panelists participated in three rounds of activities. In the first, panelists individually ranked and commented on the PC-QIs and strategies. The summarized results were discussed in the second-round face-to-face group meeting. For the last round, panelists provided their final individual rankings, informed by the group discussion. Finally, we conducted an evaluation of the consensus process from the panelists’ perspectives. Results Eleven primary care providers, patient partners, and quality improvement staff from across Alberta participated. The panelists prioritized the following PC-QIs: ‘Patient and caregiver involvement in decisions about their care and treatment’; ‘Trusting relationship with healthcare provider’; ‘Health information technology to support person-centred care’; ‘Co-designing care in partnership with communities’; and ‘Overall experience’. Implementation strategies prioritized included: ‘Develop partnerships’; ‘Obtain quality improvement resources’; ‘Needs assessment (stakeholders are engaged about their needs/priorities for person-centred measurement)’; ‘Align measurement efforts’; and ‘Engage champions’. Our evaluation suggests that panelists felt that the process was valuable for planning the implementation and obtaining feedback, that their input was valued, and that most would continue to collaborate with other stakeholders to implement the PC-QIs. Conclusions Our study demonstrates the value of co-design and participatory approaches for engaging stakeholders in adapting PC-QI implementation for the primary care context in Alberta, Canada. Collaboration with stakeholders can promote buy-in for ongoing engagement and ensure implementation will lead to meaningful improvements that matter to patients and providers.Item Open Access Context matters in understanding the vulnerability of women: perspectives from southwestern Uganda(2021-01-07) Murembe, Neema; Kyomuhangi, Teddy; Manalili, Kimberly; Beinempaka, Florence; Nakazibwe, Primrose; Kyokushaba, Clare; Tibanyendera, Basil; Brenner, Jennifer L; Turyakira, EleanorAbstract Background Vulnerability at the individual, family, community or organization level affects access and utilization of health services, and is a key consideration for health equity. Several frameworks have been used to explore the concept of vulnerability and identified demographics including ethnicity, economic class, level of education, and geographical location. While the magnitude of vulnerable populations is not clearly documented and understood, specific indicators, such as extreme poverty, show that vulnerability among women is pervasive. Women in low and middle-income countries often do not control economic resources and are culturally disadvantaged, which exacerbates other vulnerabilities they experience. In this commentary, we explore the different understandings of vulnerability and the importance of engaging communities in defining vulnerability for research, as well as for programming and provision of maternal newborn and child health (MNCH) services. Methodology In a recent community-based qualitative study, we examined the healthcare utilization experiences of vulnerable women with MNCH services in rural southwestern Uganda. Focus group discussions were conducted with community leaders and community health workers in two districts of Southwestern Uganda. In addition, we did individual interviews with women living in extreme poverty and having other conventional vulnerability characteristics. Findings and discussion We found that the traditional criteria of vulnerability were insufficient to identify categories of vulnerable women to target in the context of MNCH programming and service provision in resource-limited settings. Through our engagement with communities and through the narratives of the people we interviewed, we obtained insight into how nuanced vulnerability can be, and how important it is to ground definitions of vulnerability within the specific context. We identified additional aspects of vulnerability through this study, including: women who suffer from alcoholism or have husbands with alcoholism, women with a history of home births, women that have given birth only to girls, and those living on fishing sites. Conclusion Engaging communities in defining vulnerability is critical for the effective design, implementation and monitoring of MNCH programs, as it ensures these services are reaching those who are most in need.Item Open Access Enhancing Person-Centred Practice in Primary Care: Co-designing Strategies to Implement Quality Indicators Informed by the Patient Perspective(2022-03) Manalili, Kimberly; Santana, Maria Jose; Scott, Catherine; O'Beirne, Maeve; Hemmelgarn, BrendaPerson-Centred Care (PCC) promotes engagement with patients and caregivers to improve patient experiences and outcomes. Person-Centred Quality Indicators (PC-QIs) are quality improvement (QI) tools that support healthcare providers and organizations to identify gaps in the delivery of PCC and improve the quality of care for patients. Little is known about how to implement PC-QIs effectively so that they are adopted and used to create meaningful change in practice. We aimed to address these knowledge gaps by applying a person-centred and implementation science lens to QI and collaborate with stakeholders to inform the future implementation of PC-QIs for primary care in Alberta, Canada. The first study of this thesis was a systematic review and meta-analysis on the effectiveness of person-centred QI strategies on the management of hypertension in primary care. Our findings suggest that consistent features of person-centered QI interventions that were effective for improving hypertension outcomes included tailored communication with patients, use of health information technology, and multidisciplinary collaboration. The second and third studies of this thesis were mixed methods studies focussed on co-designing the implementation of the PC-QIs for future use in primary care in Alberta. In study two, our findings from an organizational readiness survey and interviews conducted with participants representing both Canadian system-level and Alberta clinical primary care perspectives shed light on key factors that may influence implementation. These factors included: the organization or clinics’ interest and motivation to implement the PC-QIs, resources and capacity to collect and use data for improvements, and the organizational climate for implementation of the PC-QIs, related to PCC and QI. In the third study, we conducted a consensus process with primary care stakeholders to prioritize the PC-QIs for implementation and implementation strategies that were identified, which emerged from our second study. Consensus panelists prioritized PC-QIs related to: patient and caregiver involvement in decisions about care, having a trusting relationship with the healthcare provider, health information technology to support PCC, co-designing care in partnership with communities, and overall experience. The strategies prioritized included: developing partnerships among stakeholder groups, obtaining QI resources, conducting a needs assessment, aligning measurement efforts provincially, and engaging champions.Item Open Access Supportive supervision and constructive relationships with healthcare workers support CHW performance: Use of a qualitative framework to evaluate CHW programming in Uganda(2018-02-13) Ludwick, Teralynn; Turyakira, Eleanor; Kyomuhangi, Teddy; Manalili, Kimberly; Robinson, Sheila; Brenner, Jennifer LAbstract Background While evidence supports community health worker (CHW) capacity to improve maternal and newborn health in less-resourced countries, key implementation gaps remain. Tools for assessing CHW performance and evidence on what programmatic components affect performance are lacking. This study developed and tested a qualitative evaluative framework and tool to assess CHW team performance in a district program in rural Uganda. Methods A new assessment framework was developed to collect and analyze qualitative evidence based on CHW perspectives on seven program components associated with effectiveness (selection; training; community embeddedness; peer support; supportive supervision; relationship with other healthcare workers; retention and incentive structures). Focus groups were conducted with four high/medium-performing CHW teams and four low-performing CHW teams selected through random, stratified sampling. Content analysis involved organizing focus group transcripts according to the seven program effectiveness components, and assigning scores to each component per focus group. Results Four components, ‘supportive supervision’, ‘good relationships with other healthcare workers’, ‘peer support’, and ‘retention and incentive structures’ received the lowest overall scores. Variances in scores between ‘high’/‘medium’- and ‘low’-performing CHW teams were largest for ‘supportive supervision’ and ‘good relationships with other healthcare workers.’ Our analysis suggests that in the Bushenyi intervention context, CHW team performance is highly correlated with the quality of supervision and relationships with other healthcare workers. CHWs identified key performance-related issues of absentee supervisors, referral system challenges, and lack of engagement/respect by health workers. Other less-correlated program components warrant further study and may have been impacted by relatively consistent program implementation within our limited study area. Conclusions Applying process-oriented measurement tools are needed to better understand CHW performance-related factors and build a supportive environment for CHW program effectiveness and sustainability. Findings from a qualitative, multi-component tool developed and applied in this study suggest that factors related to (1) supportive supervision and (2) relationships with other healthcare workers may be strongly associated with variances in performance outcomes within a program. Careful consideration of supervisory structure and health worker orientation during program implementation are among strategies proposed to increase CHW performance.