Browsing by Author "Wong, Britney"
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Item Open Access Barriers and facilitators to care for agitation and/or aggression among persons living with dementia in long-term care(2024-04-11) Wong, Britney; Ismail, Zahinoor; Watt, Jennifer; Holroyd-Leduc, Jayna; Goodarzi, ZahraAbstract Background Agitation and/or aggression affect up to 60% of persons living with dementia in long-term care (LTC). It can be treated via non-pharmacological and pharmacological interventions, but the former are underused in clinical practice. In the literature, there is currently a lack of understanding of the challenges to caring for agitation and/or aggression among persons living with dementia in LTC. This study assesses what barriers and facilitators across the spectrum of care exist for agitation and/or aggression among people with dementia in LTC across stakeholder groups. Methods This was a qualitative study that used semi-structured interviews among persons involved in the care and/or planning of care for people with dementia in LTC. Participants were recruited via purposive and snowball sampling, with the assistance of four owner-operator models. Interviews were guided by the Theoretical Domains Framework and transcribed and analyzed using Framework Analysis. Results Eighteen interviews were conducted across 5 stakeholder groups. Key identified barriers were a lack of agitation and/or aggression diagnostic measures, limited training for managing agitation and/or aggression in LTC, an overuse of physical and chemical restraints, and an underuse of non-pharmacological interventions. Facilitators included using an interdisciplinary team to deliver care and having competent and trained healthcare providers to administer non-pharmacological interventions. Conclusions This study advances care for persons living with dementia in LTC by drawing attention to unique and systemic barriers present across local and national Canadian LTC facilities. Findings will support future implementation research endeavours to eliminate these identified barriers across the spectrum of care, thus improving care outcomes among people with dementia in LTC.Item Open Access Detecting agitation and aggression in persons living with dementia: a systematic review of diagnostic accuracy(2024-06-26) Wong, Britney; Wu, Pauline; Ismail, Zahinoor; Watt, Jennifer; Goodarzi, ZahraAbstract Objective 40–60% of persons living with dementia (PLWD) experience agitation and/or aggression symptoms. There is a need to understand the best method to detect agitation and/or aggression in PLWD. We aimed to identify agitation and/or aggression tools that are validated against a reference standard within the context of PLWD. Methods Our study was registered on PROSPERO (CRD42020156708). We searched MEDLINE, Embase, and PsycINFO up to April 22, 2024. There were no language or date restrictions. Studies were included if they used any tools or questionnaires for detecting either agitation or aggression compared to a reference standard among PLWD, or any studies that compared two or more agitation and/or aggression tools in the population. All screening and data extraction were done in duplicates. Study quality was assessed using the Quality Assessment of Diagnostic Accuracy Studies 2 (QUADAS-2) tool. Data extraction was completed in duplicates by two independent authors. We extracted demographic information, prevalence of agitation and/or aggression, and diagnostic accuracy measures. We also reported studies comparing the correlation between two or more agitation and/or aggression tools. Results 6961 articles were screened across databases. Six articles reporting diagnostic accuracy measures compared to a reference standard and 30 articles reporting correlation measurements between tools were included. The agitation domain of the Spanish NPI demonstrated the highest sensitivity (100%) against the agitation subsection of the Spanish CAMDEX. Single-study evidence was found for the diagnostic accuracy of commonly used agitation scales (BEHAVE-AD, NPI and CMAI). Conclusions The agitation domain of the Spanish NPI, the NBRS, and the PAS demonstrated high sensitivities, and may be reasonable for clinical implementation. However, a limitation to this finding is that despite an extensive search, few studies with diagnostic accuracy measurements were identified. Ultimately, more research is needed to understand the diagnostic accuracy of agitation and/or aggression detection tools among PLWD.Item Embargo Developing a Novel Care Pathway for Symptoms of Agitation or Aggression in Persons Living with Dementia in Long-Term Care: A Multi-Methods Implementation Research Study(2023-06) Wong, Britney; Goodarzi, Zahra; Holroyd-Leduc, Jayna; Ismail, Zahinoor; Watt, JenniferBackground: Agitation and/or aggression are common among persons living with dementia (PLWD) in LTC, and together pose a significant burden to residents and their caregivers. Current treatment practices for agitation and/or aggression are highly variable among PLWD in LTC. There is a need to develop a more effective approach to treatment and to explore the barriers and facilitators to providing care for agitation and/or aggression among PLWD in LTC. Objectives: The first objective was to develop an evidence-informed clinical care pathway co-designed with stakeholders, to improve care for agitation and/or aggression among PLWD in LTC. The second objective was to identify barriers and facilitators to agitation and/or aggression care across the spectrum of care. Methods: Objective 1 used a modified Delphi panel to develop the clinical care pathway. Objective 2 used semi-structured interviews with key stakeholders to identify the barriers and facilitators to care. Framework Analysis was used to map identified barriers and facilitators to key behavioral domains of the Theoretical Domains Framework. Results: Crucial pathway features included using an interdisciplinary care team approach across the spectrum of care and featuring a broad range of non-pharmacological interventions. Several statements in our pathway did not reach agreement and require a third round of the Delphi. Perceived barriers for agitation and/or aggression care included a lack of validated tools to detect agitation and/or aggression, inconsistent training practices, and a limited number of available non-pharmacological interventions. Key facilitators were using an interdisciplinary care team and having trained healthcare providers to administer non-pharmacological interventions. Conclusions: Our study advances the state of evidence for agitation and/or aggression care among PLWD in LTC. Our efforts will inform future implementation research strategies working to improve the delivery and management of care. With more effective care approaches, the quality of life of PLWD in LTC will also improve.