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Browsing Research Centres, Institutes, Projects and Units by Department "O’Brien Institute for Public Health"
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Item Open Access ERAS From the Patient Perspective(2016-10-08) Gill, Marlyn; Zelinsky, Sandra; Gillis, Chelsia; Nguyen, SusanItem Open Access Experiences of Heart Related Symptoms Among Younger Women(2016) Choudhury, Romita; Robertshaw, Sandra; Wheeler, Laura; Pearson, WinnieItem Open Access I Promised We’d Get Help: The Parent’s Journey – Experiences of Parents and Family of Youth Visiting the Emergency Department with Mental Health Concerns(2018) Kockzur, Susanna; Halton, Esther; Pintson, KarinaItem Open Access I was Curious, I Wanted To Confirm What I Thought I Knew and I Wanted to Change(2014-12) Sim, NataliaItem Open Access Issues Faced by First Nations, Metis and Inuit Rheumatoid Arthritis Patients in Accessing and Navigating the Health Care System(2015-11-20) Miller, Jean; Teare, SylviaItem Open Access Living With Inflammatory Bowel Disease(2016-02) Fairs, Clair; Lengkeek, Shannon; Van Engelen, Amy; McKinney, LaurieItem Open Access Losing Our Stories: Early Experiences of Individuals Facing Mental Illness(2015-03-09) Koczkur, Susanna; Halton, Esther; Sarsfield, Barb; Adams, Susan; Hellard, OaitseItem Open Access Meaningful Results from Meaningful Engagement: Enabling Patient and Family Participation in the AHS Seniors Health SCN(2015-04-05) Miller, Jean; Teare, SylviaItem Open Access Oh! Canada: South East Asian Immigrant Experience of Osteoarthritis (OA) Surgery(2013-08) Kalia, Rashika; Khan, Rooh-Afza; Sheridan, Mary; Marlett, Nancy; Shklarov, Svetlana; Gill, MarlynItem Open Access Optimizing Centralized Intake for Rheumatoid Arthritis: a PaCER Study(2015-03-21) Miller, Jean; Teare, SylviaItem Open Access Patient and Family Experiences When Moving from the Intensive Care Unit (ICU) to a Hospital Ward(2015-01-30) Boulton, Debbie; Oswell, Donna; Oxland, PeterItem Open Access Patient and Family Experiences: The First Days After Stroke(2016-02-04) Murphy, Brendan; Ryan, Laurel; Sharman, DonnaItem Open Access Patient Engagement in Breast Health Education Initiative(2017-10-31) Choudhury, Romita; Wheeler, LauraItem Open Access Patient Engagement to Identify Priorities for Shared Decision-Making Tools in Cardiac Care(2016-02-29) Miller, Jean; Teare, SylviaItem Open Access Patient Experience of Waiting for Elective Surgery(2017-07-14) Gill, Marlyn; Nguyen, Susan; Sarsfield, Barb; Shklarov, SvetlanaItem Open Access Patient Perspectives and Expectations About Primary Care by Occasional Users, Seniors and Those With Complex and Chronic Care Needs(2017-03-04) Marlett, Nancy; Gill, Marlyn; Kozcur, Susanna; Choudhury, RomitaItem Open Access Report on the Analysis of The PaCER Patient Interviews from KOASK Phase 2(2019-01-16) Miller, Jean; Teare, SylviaItem Open Access Report on the PaCER Component of the AS MOC Study(2014-05-25) Miller, Jean; Teare, SylviaItem Open Access Report on the PaCER Component of the Knee Osteoarthritis and Self –Management Knowledge(2017-06-14) Miller, Jean; Teare, SylviaItem Open Access Stillbirth, still life: A qualitative patient-led study on parents’ unsilenced stories of stillbirth(2017) Roland, Brenda; Wheatley, Venesa; Jones, Ashley; Gillis, ChelsiaObjective: Explore parents’ experiences of stillbirth using a patient-led qualitative approach. Methods: Parents who had experienced stillbirth in the previous 5 years were recruited through posters and snowball sampling, each participating in one or more data collection event. We conducted a co-design focus group to set the direction of our research, narrative interviews, and a reflect focus group to engage parents in finalizing the analysis and findings. Data were analysed iteratively using a participatory grounded theory approach. Results: Parents’ (n=11) experiences tended to be expressed in the form of two narratives: clinical and personal; the historical silent discourse permeated both narratives. The clinical experience, Abandoned in silence, was sub-divided into three categories: 1) Lead me through the decision with one sub-category: Recognize that I am having a birth and death experience; 2) I need specialized care now; and 3) I need specialized care later. The personal experience, Shrouded in silence, was sub-divided into three categories: 1) I survived the space between; 2) I am learning to forge a new path; and 3) My daughter’s name is Charlotte. Stillbirth is a story of death, but it is also a story of life. In stillbirth, parents require the space to experience both the birth and death elements of the story; yet, one or both elements are often silenced. Stillbirth, still Life was the core concept that emerged from parents’ stories of their stillborn babies. Conclusion: Parents’ narratives are driven by the need to honour their babies’ lives. They are learning to be unsilenced.