Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

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dc.contributor.authorDuggleby, Wendy
dc.contributor.authorJovel Ruiz, Kathya
dc.contributor.authorPloeg, Jenny
dc.contributor.authorMcAiney, Carrie
dc.contributor.authorPeacock, Shelley
dc.contributor.authorNekolaichuk, Cheryl
dc.contributor.authorHolroyd-Leduc, Jayna
dc.contributor.authorGhosh, Sunita
dc.contributor.authorBrazil, Kevin
dc.contributor.authorSwindle, Jennifer
dc.contributor.authorForbes, Dorothy
dc.contributor.authorWoodhead Lyons, Sandra
dc.contributor.authorParmar, Jasneet
dc.contributor.authorKaasalainen, Sharon
dc.contributor.authorCottrell, Laura
dc.contributor.authorParagg, Jillian
dc.date.accessioned2018-11-08T12:19:21Z
dc.date.available2018-11-08T12:19:21Z
dc.date.issued2018-10-31
dc.date.updated2018-11-08T12:19:21Z
dc.description.abstractAbstract Background Following institutionalization of a relative with Alzheimer disease and related dementias (ADRD), family carers continue to provide care. They must learn to negotiate with staff and navigate the system all of which can affect their mental health. A web-based intervention, My Tools 4 Care-In Care (MT4C-In Care) was developed by the research team to aid carers through the transitions experienced when their relative/friend with ADRD resides in a long-term care (LTC) facility. The purpose of this study was to evaluate MT4C-In Care for feasibility, acceptability, ease of use, and satisfaction, along with its potential to help decrease carer’s feelings of grief and improve their hope, general self-efficacy, and health-related quality of life. Methods The study was a mixed-methods single-arm repeated measures feasibility study. Participants accessed MT4C-In Care over a 2-month period. Data were collected at baseline and 1 and 2 months. Using a checklist, participants evaluated MT4C-In Care for ease of use, feasibility, acceptability, and satisfaction. Measures were also used to assess the effectiveness of the MT4C-In Care in improving hope (Herth Hope Index), general self-efficacy (GSES), loss and grief (NDRGEI), and health-related quality of life (SF12v2) of participants. Qualitative data were collected at 2 months and informed quantitative findings. Results The majority of the 37 participants were female (65%; 24/37), married (73%; 27/37), and had a mean age of 63.24 years (SD = 11.68). Participants reported that MT4C-In Care was easy to use, feasible, and acceptable. Repeated measures ANOVA identified a statistically significant increase over time in participants hope scores (p = 0.03) and a significant decrease in grief (< 0.001). Although significant differences in mental health were not detected, hope (r = 0.43, p = 0.03) and grief (r = − 0.66, p < 0.001) were significantly related to mental health quality of life. Conclusion MT4C-In Care is feasible, acceptable, and easy to use and shows promise to help carers of family members with ADRD residing in LTC increase their hope and decrease their grief. This study provides the foundation for a future pragmatic trial to determine the efficacy of MT4C-In Care. Trial registration ClinicalTrials.gov NCT03571165. June 30, 2018 (retrospectively registered).
dc.identifier.citationPilot and Feasibility Studies. 2018 Oct 31;4(1):165
dc.identifier.doihttps://doi.org/10.1186/s40814-018-0356-7
dc.identifier.urihttp://hdl.handle.net/1880/109160
dc.identifier.urihttps://doi.org/10.11575/PRISM/44183
dc.language.rfc3066en
dc.rights.holderThe Author(s).
dc.titleMixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities
dc.typeJournal Article
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