Approaches Perceived to Promote Allyship Between Researchers and the Autistic Community

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dc.contributor.advisorNicholas, David
dc.contributor.authorOrjasaeter, Jesse Daniel
dc.contributor.committeememberMcLaughlin, Anne Marie
dc.contributor.committeememberBenzies, Karen
dc.contributor.committeememberNicholas, David
dc.contributor.committeememberSamson, Patricia
dc.date2021-06
dc.date.accessioned2021-05-10T20:41:31Z
dc.date.available2021-05-10T20:41:31Z
dc.date.issued2021-05-06
dc.description.abstractPrevious research regarding autistic people has largely been limited in regards to its meaningful engagement with the autistic community, particularly in terms of determining research priorities and engagement in research planning and processes. This tendency of exclusion in such research opportunities may result in diminished community understanding of autism from the direct perspective of autistic people themselves, and of a potential lack of social and community inclusion overall. This study addressed the question, ‘what are perceived to be optimal approaches of promoting allyship between researchers and the autistic community?’ Research aims were to explore and promote allyship and collaboration between the research and autistic community in (a) identifying perceived means to build allyship in autism research, and (b) demonstrating and exploring an instance of meaningful engagement of autistic adults in research. Two mixed focus groups and an email interview were facilitated with a total of 6 autistic individuals, 4 autism researchers, and 2 individuals who identified as both autistic individuals and researchers. Methodologic decisions were made according to principles of participatory research and guided by a critical theoretical framework. Study results included the identification of approaches for allyship in autism research, including (a) a mediation or advisory group that would serve to ‘bridge’ the autistic community and autism researchers; (b) mentorship opportunities for autistic individuals aiming to access research information and experience, as well as for researchers aiming to inclusively engage with the autistic community; and (c) a partnership between community members and a research or university setting.en_US
dc.identifier.citationOrjasaeter, J. D. (2021). Approaches Perceived to Promote Allyship Between Researchers and the Autistic Community (Master's thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.en_US
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/38848
dc.identifier.urihttp://hdl.handle.net/1880/113394
dc.language.isoengen_US
dc.publisher.facultySocial Worken_US
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en_US
dc.subjectautismen_US
dc.subjectautistic communityen_US
dc.subjectallyshipen_US
dc.subjectparticipatoryen_US
dc.subjectcritical social worken_US
dc.subject.classificationSocial Worken_US
dc.titleApproaches Perceived to Promote Allyship Between Researchers and the Autistic Communityen_US
dc.typemaster thesisen_US
thesis.degree.disciplineSocial Worken_US
thesis.degree.grantorUniversity of Calgaryen_US
thesis.degree.nameMaster of Social Work (MSW)en_US
ucalgary.item.requestcopytrueen_US
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