Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis

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dc.contributor.authorGrazziotin, Luiza R.
dc.contributor.authorCurrie, Gillian
dc.contributor.authorTwilt, Marinka
dc.contributor.authorIJzerman, Maarten J.
dc.contributor.authorKip, Michelle M. A.
dc.contributor.authorKoffijberg, Hendrik
dc.contributor.authorBonsel, Gouke
dc.contributor.authorBenseler, Susanne M.
dc.contributor.authorSwart, Joost F.
dc.contributor.authorVastert, Sebastiaan J.
dc.contributor.authorWulffraat, Nico M.
dc.contributor.authorYeung, Rae S. M.
dc.contributor.authorArmbrust, Wineke
dc.contributor.authorvan den Berg, J. M.
dc.contributor.authorMarshall, Deborah A.
dc.date.accessioned2022-07-24T00:03:25Z
dc.date.available2022-07-24T00:03:25Z
dc.date.issued2022-07-23
dc.date.updated2022-07-24T00:03:25Z
dc.description.abstractAbstract Objective This study investigates the relationship of child, caregiver, and caring context measurements with the care-related quality of life (CRQoL) and health-related quality of life (HRQoL) of caregivers of children with juvenile idiopathic arthritis (JIA). Methods We performed a cross-sectional analysis of baseline data on caregivers of children with JIA from Canada and the Netherlands collected for the “Canada-Netherlands Personalized Medicine Network in Childhood Arthritis and Rheumatic Diseases” study from June 2019 to September 2021. We used the CRQoL questionnaire (CarerQoL), adult EQ-5D-5L, and proxy-reported Youth 5-Level version of EuroQoL (EQ-5D-5L-Y) to assess caregiver CRQoL, caregiver HRQoL, and child HRQoL, respectively. We used a multivariate analysis to assess the relationship between both caregiver CRQoL and HRQoL and patient, caregiver, and caring context measurements. Results A total of 250 caregivers were included in this study. Most of the caregivers were from the Netherlands (n = 178, 71%) and 77% were females (n = 193). The mean CarerQoL scores was 82.7 (standard deviation (SD) 11.4) and the mean EQ-5D-5L utility score was 0.87 (SD 0.16). Child HRQoL and employment had a positive relationship with both caregiver CarerQoL and EQ-5D-5L utility scores (p < 0.05), while receiving paid or unpaid help had a negative relationship with both scores (p < 0.05). Conclusion Our findings indicated that to understand the impact of JIA on families, we need to consider socio-economic factors, such as employment and support to carry caregiving tasks, in addition to child HRQoL.
dc.identifier.citationPediatric Rheumatology. 2022 Jul 23;20(1):51
dc.identifier.doihttps://doi.org/10.1186/s12969-022-00713-7
dc.identifier.urihttp://hdl.handle.net/1880/114875
dc.identifier.urihttps://doi.org/10.11575/PRISM/45154
dc.language.rfc3066en
dc.rights.holderThe Author(s)
dc.titleFactors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis
dc.typeJournal Article
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