Unable To Feed My Hungry Child: A Narrative Inquiry into the Experience of Caring for a Child with Prader Willi Syndrome

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dc.contributor.advisorEstefan, Andrew
dc.contributor.authorCurrie, Margaret Genevieve
dc.contributor.committeememberEstefan, Andrew
dc.contributor.committeememberCaine, Vera
dc.contributor.committeememberMoules, Nancy
dc.contributor.committeememberDimitropoulos, Georgina
dc.contributor.committeememberBengezen, Viviane
dc.date2023-02
dc.date.accessioned2023-01-06T21:15:29Z
dc.date.available2023-01-06T21:15:29Z
dc.date.issued2022-12-22
dc.description.abstractPrader-Willi syndrome is a genetic disorder that causes insatiable hunger and overeating. It poses both significant health risks and complex social challenges for families. The experiences of mothers caring for a child with Prader Willi syndrome and managing the hyperphagia and anxiety are not well known. Researchers have studied the biological make up of Prader Willi syndrome but few have explored mothers’ experiences in managing the physical and mental health issues of caring for a child with hyperphagia, anxiety, and insatiation. This study is a narrative inquiry into the experiences of four mothers caring for their children with Prader Willi syndrome. Narrative inquiry is the study of experience using storied accounts and attends to the dimensions of temporality, place, and sociality. Four narrative accounts were co-composed with participants and highlight the complex political and social landscapes for families. The narrative accounts revealed two narrative threads, engaging in (extra)ordinary care practices, and navigating tensions called forth by coherent and incoherent stories. Recommendations for practice, policy, and theory are also presented after inquiring into mothers’ experiences.en_US
dc.identifier.citationCurrie, M. G. (2023). Unable To Feed My Hungry Child: A Narrative Inquiry into the Experience of Caring for a Child with Prader Willi Syndrome (Doctoral thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.en_US
dc.identifier.urihttp://hdl.handle.net/1880/115657
dc.identifier.urihttps://dx.doi.org/10.11575/PRISM/40583
dc.language.isoengen_US
dc.publisher.facultyNursingen_US
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en_US
dc.subjectneurodevelopmental disorderen_US
dc.subjectPrader Willi syndromeen_US
dc.subjectdisabilityen_US
dc.subjectnarrative inquiryen_US
dc.subjectmother's experienceen_US
dc.subjectchildrenen_US
dc.subjecthungeren_US
dc.subject.classificationNursingen_US
dc.titleUnable To Feed My Hungry Child: A Narrative Inquiry into the Experience of Caring for a Child with Prader Willi Syndromeen_US
dc.typedoctoral thesisen_US
thesis.degree.disciplineNursingen_US
thesis.degree.grantorUniversity of Calgaryen_US
thesis.degree.nameDoctor of Philosophy (PhD)en_US
ucalgary.item.requestcopytrueen_US
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