The Experience of Receiving a Late Diagnosis for Autistic Young Adults

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dc.contributor.advisorMcCrimmon, Adam
dc.contributor.authorSchembri-Mutch, Taylor
dc.contributor.committeememberZwiers, Michael
dc.contributor.committeememberNicholas, David
dc.date2021-11
dc.date.accessioned2021-09-16T19:54:52Z
dc.date.available2021-09-16T19:54:52Z
dc.date.issued2021-09
dc.description.abstractAutism spectrum disorder (ASD) is a neurodevelopmental disorder which presents with deficits in social communication and restricted, repetitive patterns of behaviour. ASD is estimated to occur in 1 in 59 individuals, with the average age at diagnosis being 53 months. Yet, many individuals are missed as children and diagnosed later in life. As a result, adults are now diagnosed more often than youth and/or children. Despite this, little is known about the experience of receiving a late ASD diagnosis. A qualitative inquiry was conducted to better understand the experience of diagnosis and what it is like to be undiagnosed vs. diagnosed with ASD. Eight participants were interviewed and their responses analyzed using interpretive phenomenological analysis. Results identified 29 themes across three different levels. Level 1 themes represented pre-diagnosis and post-diagnosis timeframes and were broken down into Level 2 themes. The pre-diagnosis Level 2 themes were circumstances leading to diagnosis, hidden diagnosis, alternative identities, and potential negative outcomes of not having an ASD diagnosis while the post-diagnosis Level 2 themes were settling into diagnosis, potential benefits of receiving an ASD diagnosis, potential negative outcomes of an ASD diagnosis, and desires. Some Level 2 themes were further broken into more detailed Level 3 themes which communicated the nuances in experiences for each of the participants.en_US
dc.identifier.citationSchembri-Mutch, T. (2021). The experience of receiving a late diagnosis for autistic young adults (Doctoral thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.en_US
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/39210
dc.identifier.urihttp://hdl.handle.net/1880/113884
dc.language.isoengen_US
dc.publisher.facultyWerklund School of Educationen_US
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en_US
dc.subjectautism spectrum disorder (ASD)en_US
dc.subjectdiagnosisen_US
dc.subjectqualitative researchen_US
dc.subjectadultsen_US
dc.subject.classificationEducational Psychologyen_US
dc.subject.classificationPsychologyen_US
dc.titleThe Experience of Receiving a Late Diagnosis for Autistic Young Adultsen_US
dc.typedoctoral thesisen_US
thesis.degree.disciplineEducation Graduate Program – Educational Psychologyen_US
thesis.degree.grantorUniversity of Calgaryen_US
thesis.degree.nameDoctor of Philosophy (PhD)en_US
ucalgary.item.requestcopytrueen_US
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